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Product details
File Size: 1359 KB
Print Length: 223 pages
Publisher: Oxford University Press; 2 edition (May 1, 2005)
Publication Date: May 1, 2005
Sold by: Amazon Digital Services LLC
Language: English
ASIN: B00U7TCV7O
Text-to-Speech:
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Amazon Best Sellers Rank:
#178,964 Paid in Kindle Store (See Top 100 Paid in Kindle Store)
I purchased this for a newly diagnosed friend. Yes, the second edition is 12 years old. But I still found it relatively easy to understand, with helpful hints & useful information, in regard to both physical and emotional aspects of the disease. The chapter on potential kidney involvement in 20% of patients is one that should be read by everyone with scleroderma - because unlike many aspects of the disease that are slow in onset, the spike in blood pressure it can cause (with few symptoms) may lead to relatively quick and irreversible kidney damage and the need for dialysis. The physician/expert/author of this book therefore recommends self-testing of blood pressure twice a week for all scleroderma patients, and seeing a doctor if it spikes for 3 or more days in a row (with ACE inhibitor drugs used to bring pressure back to normal, and saving your kidneys!) . This crucial information for the patent -in and of itself- is worth the price of the book (I only paid $5 used- in excellent condition).
This is a very life changing personal disease that baffles most doctors. This books offers information in a very clear tone and well balanced overview of a seldom well understood disease. As a caretaker of someone with the disease for almost 10 years from original diagnosis and almost 30 years of symptoms is enlightening to read such a resource from a doctor in the trenches. Hope to reach out and meet the author to express our gratitude for sharing her experiences.
This book, written by a doctor who specializes in Scleroderma, clearly explains a lot of complicated material. I read it cover to cover and plan to refer back to it often as situations change.
Our doctor recommended we read this book. I found that there isn't much information in it that I didn't already know from reading the internet. Would not recommend buying if you can use google.
Dr. Mayes clarifies many things about scleroderma. The book is extremely well organized, kept patient and family friendly and explains every term and process one might not be very familiar with. I have appreciated the book immensely and recommend it to anyone with or interested in this disease. I wish Dr. Mayes would write an update.
This is a good introduction to Scleroderma by a leading expert in the disease. It is simple and straightforward and generally accurate. It is particularly good as an introduction for new patients and their family.
This book's thorough coverage of the basics of scleroderma are something we patients have long been waiting to find on our bookstore shelves. For too long we've only been a short blurb in some general disease book with no more than a paragraph of information, some incredibly out-of-date. The gentle, readable style is enhanced by personal accounts of patient experiences, and one is left reassured and hopeful by Dr. Mayes' practical help on dealing with the disease today and confidence in the cure of tomorrow.
Very informative.
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